Sunday, June 20, 2010

In The Beginning....

How could I have known, back in the 70s, that all those weekends on Panama City Beach would come back to haunt me in a big way decades later? Well, they did, and I hope my experience helps anyone having to deal with Mohs surgery and its aftereffects.

A little background:
For the past year, I'd had a small sore at the very tip of my nose. It would get red, then peel single layers of skin for a couple weeks. Eventually it would be raw, and it would bleed. My dermatologist froze the spot twice, and we really hoped it wouldn't return. Unfortunately, it did, and this time it didn't heal. My dr. decided it was time for a biopsy, and while he was taking the tissue, he thought maybe it was superficial, and that if he took extra tissue, I might be able to avoid any further treatment. Two days later, tho, he called and said the biopsy came back positive for Basal Cell Carcinoma. The good news is that BCC is the easiest type of cancer to deal with, providing you catch it early. My dr. said he would be forwarding my biopsy results to a Mohs specialist, and that doctor's office would call me to schedule the procedure.

I researched Mohs surgery pretty thoroughly online, so I had a good idea of what I was facing. What I couldn't know until the actual surgery was just how advanced my cancer was. I understood the basic process: The surgeon would excise a layer of tissue, then freeze it, then slice it, then examine it for cancer cells. This process would be repeated until no cancer cells could be detected.

My surgery was scheduled for two weeks from the date of the biopsy call. I dreaded it simply because it was surgery on my face, but I also kept reminding myself that a scar was better than having cancer. Not only that, I've had close friends with types of cancer way worse than the little spot on my nose.

Day of Surgery:
We had to be at the clinic at 6:30 am. I was brought back for removal of the first layer of tissue about 15 minutes later. The absolute worst parts of the procedure were the numbing shots. Imagine having needles stuck into the tip of your nose, and even then, you can't imagine that pain. My eyes watered like I was crying, although I wasn't. While the surgeon waited for the anesthetic to take effect, he went into the next room and I could hear his conversation with an older lady who was also having the procedure that day. She literally screamed as she was given her injections, so I didn't feel quite so bad about being such a wuss getting mine.

The surgeon came back to me and cut out the first layer of tissue. I had DH take a picture of the "hole" with his phone camera. The nurse put a temporary bandage on my nose and sent me back to the waiting room. By now, the small waiting area was full of patients - all of them quite a bit older than I.


One of my friends in the UK sent me an excellent book, and I brought it to the appointment to help pass the time. I sat and read until the nurse called me back to the treatment room and said they needed to take another layer of tissue. The surgeon gave me a numbing "boost," which didn't hurt as much since I still had some numbness from the original shots. He took the second layer of tissue, then the process of taking a picture, applying the temporary bandage and sending me back to the waiting area was repeated. Again, I sat and read until I was called.


The nurse came to get me about 15 minutes later and said they needed to take yet another layer because my tissue still showed cancer cells. Geez... Another numbing boost and another layer of tissue removed. Another picture was taken. This time I was allowed to stay in the treatment room and read while I waited for the results.



It wasn't long before the surgeon came in and said my cancer had developed "roots" and had spread beyond the small spot on my nose, and that he needed to take a 4th layer of tissue. More numbing, another layer taken, another picture taken, then more waiting. Again, I stayed in the treatment room afterward. This time, I stretched out on the table and tried to relax. The more tissue they removed, the more anxious I became.


Finally the surgeon came in and said I was free of cancer cells. Now it was time for "closure," meaning, closing the hole left by the surgery. Unfortunately, the hole was too large to just sew it together, and I needed a skin graft to cover it. The surgeon said it would be a lengthy procedure, and he closed two other patients before it was my turn.

"Closure":
I was brought back to the original treatment room and the surgeon said I wouldn't like this part very much. I had to have more numbing shots, not only ON my nose, but also AROUND my nose. After about six injections, I told him to stop, that I needed a minute to breathe. Then he injected 5 or 6 more, and I needed him to stop again. The last few injections were the worst. One to my left nostril sent a pain all the way to my toes, and I literally saw stars. My eyes were watering like I was having a good cry. Even tho I wasn't, I really felt like I could. My stress level had reached about a 9 on a scale of 1-10.

As the surgeon got ready for the procedure, his nurse and another assistant joined him. I told him I'd be forever grateful for some Valium for my anxiety. He said he didn't have any, and that he couldn't give it to me if he did. If he were to administer those types of drugs, his clinic would have to be classified as a surgical center, blah blah blah. OK, I understood. I was wishing I'd brought my own from home, but it was too late for that.

The surgeon covered the upper part of my face and then my chin, leaving only my nose exposed. While I didn't feel any pain, per se, it felt like he was building a house on my nose. There was so much pulling, pushing, tapping, and lots of pressure. At one point, I thought he was taking tissue from my forehead; there was so much pressure there. I hadn't had any numbing shots there, tho, so he must've been using my forehead as a work space of some sort. He had removed tissue from my upper nose to graft over the hole in the tip of my nose.



After about 50 minutes, he was finished with the surgery and the tech was left to apply a considerable bandage to my swollen face. I was physically and emotionally exhausted, after all, it was now 2:00 and I'd been there since 6:30. I felt pretty shell-shocked on the drive home, and the first thing I did was to take some Tylenol, as the doctor had advised, then I took a Valium.



I slept until 6:30 pm, then got up to eat something and watch some TV. The more time passed, the more my face started to hurt. I was able to get a good night's sleep, for which I was really thankful. I was expecting to feel worse the next day.

3 comments:

  1. I had a wart/pimple like lesion on the tip of my nose. The first Dr. picked at it and sent me to a specialist.The specialist lopped it off and sent it for analysis and it came back as a squamous cell carcinoma. A fast growing and invasive type of skin cancer. It grew back really fast, in less than three weeks.I went in for surgery and reconstruction but after 8 hours of waiting I was sent home as her time in the operating room ran out. I went in the next day to her office and had it done at her clinic. The injections were not pleasant but did not hurt that much. Less than a bee sting. I am a relaxed sort of person so valium etc. never crossed my mind. I have to go back in a week and see if there is any cancer left. If there is then more comes off. After that there is reconstruction to be done, including skin grafts. BUT...there are so many parts of the world where treatment of these things is just not available and the cancer would just eat a big hole in the middle of your face. Complaining about a stinging needle and having to wait all day is truly a first world problem. I am thankful that the diagnosis was fast and the surgery was an option and reconstruction was all paid for by insurance. If you get cancer on your face this is the time and place to be for the best possible chance at a positive outcome. At this point I am told there is a 95% chance it will not return. Pretty good odds.

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